Free Keratoconus Starter Kit
A clearer next step.
For adults, young people, and parents or caregivers: understand the diagnosis, know what care can involve, and feel more prepared for the decisions ahead.
PDF guide, 10 pages ยท about 1.46 MB. Free, no account, no forms to complete. One optional appointment checklist.
What's inside
A guide to read, not a workbook. Each part answers questions people commonly bring to their first visits.
Your diagnosis and everyday concerns
What keratoconus changes, why glasses may not be enough, and questions about vision, work and driving (pp. 2-3).
Two distinct goals of care
Seeing more clearly and assessing progression are different aims. Learn what each option is meant to do (p. 4).
Care at every age, for families
For children, teens, parents and caregivers: individual monitoring, rubbing and allergy questions, and room for a young person's own voice (p. 5).
What a lens fitting involves
Why a specialty lens fitting takes trials and follow-up, and what to ask before you start (pp. 6-7).
Costs, coverage and one optional checklist
What to ask before the bill, what authorization means, and a single printable appointment checklist (pp. 8-9).
Children, teens and families
Care at every age.
Keratoconus can begin before the teen years and may progress faster in children, so a young person needs their own plan. Page 5 of the guide helps families prepare.
- Ask how soon assessment and repeat scans are needed for your child.
- Get help with eye rubbing, itching or allergies.
- Let your child or teen choose a question about school, sports or lenses.
- Agree who helps with the routine and how school can support it.
Sources: AAPOS and the 2026 ERN-EYE pediatric consensus, cited in the guide. Treatment timing and suitability are individual decisions made with your child's care team.
Look inside before you download
Five actual pages from the PDF. Select a page to enlarge and zoom, or read the same section as text.
Page 3: where the cornea is, and how keratoconus thins and reshapes it. Page 4: two different goals of care, and why monitoring still matters. Page 5: care at every age, for children, teens and families. Page 7: how a scleral lens sits on the eye. Page 9: the optional one-page appointment checklist.
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Common questions
- Who is the kit for?
- Adults, teens and children with keratoconus, or who may have it, and the parents, caregivers, family members or friends who help them get care. Page 5 is written for children, teens and families.
- Is it free? Do I need an account?
- Yes, it is free, and no account is needed. You can download the PDF guide or read it on this site. There are no forms to complete.
- Is there anything to fill in?
- No. The guide is for reading. Page 9 is one optional appointment checklist you can print or ignore.
- Do I have to give my email?
- No. Email is an optional way to receive a copy. Download and reading work without it. Updates are a separate choice you confirm by email.
- Are the people in the photos real patients?
- No. The scenes are illustrative images generated with AI. They are not actual patients or clinicians and do not represent an endorsement.
- Can it tell me what treatment I need?
- No. The kit is general education that helps you organize questions. It does not diagnose keratoconus or choose treatment. Your eye care clinician does that with you.
Looking for care? Search source-checked offices by distance and service, or read the patient guides.
Separate from the Starter Kit. Downloading or requesting the kit never signs you up.
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Clinically reviewed and approved October 22, 2026. Version 1.4, updated 2026-10-22. Prepared by the KeratoconusRegistry Editorial Team from public sources listed in the guide. Photos are illustrative AI-generated scenes; diagrams are simplified schematics. Source organizations have not endorsed it. General education only, not a substitute for an eye exam.
See the kit's sources