About KeratoconusRegistry

Keratoconus care can be hard to find. Specialty lens fitting and corneal cross-linking are offered by fewer offices than routine eye care, and it is not always clear which office does what. KeratoconusRegistry helps people with keratoconus, and the people who support them, find care across the U.S. and prepare for appointments.

KeratoconusRegistry is a public care directory plus patient education. It is not a clinical registry or research study, it does not enroll patients, and it does not keep patient medical records. Searching the directory or reading a guide does not sign you up for anything.

• A provider directory of 112 source-checked listings you can search by ZIP, city or state, with approximate straight-line distances from Census area centers, and by service. Each listed fact links to the official public page it came from.
• The Keratoconus Starter Kit, a free 10-page PDF guide explaining the diagnosis, two goals of care, what visits and specialty lens fittings involve, and costs, with one optional printable checklist, plus a phone-friendly version.
• Plain-language articles 14 guides covering a new diagnosis, your care team, corneal maps, children, teens and families, eye rubbing, specialty lens care and fogging, cross-linking, driving, warning signs, costs and appointments.

We write in our own words from public sources such as the National Eye Institute, the American Academy of Ophthalmology, the American Optometric Association, the Scleral Lens Education Society, Mayo Clinic, OHSU Casey Eye Institute and published research. Each page lists its sources.

Text clinical review of the current edition of all 14 patient guides was completed on October 21, 2026. That review covers only that edition; a guide changed later is labeled pending until it is reviewed again. The current Starter Kit (version 1.4, 10 pages), the keratoconus overview text and drawings, and seven updated guide illustrations were reviewed separately and approved on October 22, 2026. Each page shows its own review status, and we do not claim clinician review where none is documented.

Our content is general education. It cannot diagnose you or replace an eye exam, and decisions about treatment belong with you and your eye care clinician.

Guides on this site are written and maintained by the KeratoconusRegistry Editorial Team. Clinical review is recorded internally for each guide edition; public credit stays with the editorial team. Each guide states whether its current edition has completed clinical review.

Listings come from official public pages of each office or institution. We label each service as performed on site, by referral, listed by the wider program, or not stated. We do not list ratings or guessed details, and search distances are approximate straight-line estimates between Census area centers, not office addresses. Read the full method.

We may offer clearly labeled sponsorships to organizations whose services are relevant to people with keratoconus. Sponsorship never buys a listing, changes source evidence or search order, or shapes educational content, and we do not sell email lists. See sponsorship.

Questions, corrections and partnership ideas are welcome. We cannot answer personal medical questions.